Readjustments come more often

I bought Jordan another coat. It isn’t something I planned in our budget… It’s just another one of those things that come up when you have a little arm. I try to plan ahead. I buy things during January for the next year because winter stuff is so much cheaper. Last year I snagged a…

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VIDEO: Meet Jordan's swim paddle

Introducing Miss Jordan’s new swim paddle! Before we left Chicago we had a chance to hop into a hotel pool and test it out. The paddle is attached to her arm with two rubber bands and velcro. It’s very different for Jordan since it holds on tightly and she’s not a fan of how it…

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Party animal

Sure Jordan is a little young to party all the time… but she did get a chance to go to two different birthday parties over the weekend. She had a blast… But in one of the parties I watched a little girl staring at Jordan and clearly wanted to reach out and touch her arm…

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Letting her mourn a bit

I’ve mentioned before how Jordan is recognizing her differences… I try not to make a big deal out of the little mentions here and there. But last night was difficult for me and a bit of a moment of awareness for me as a parent. Here’s the story. I was asking Jordan to get ready…

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"Everyone's different"

Jordan’s questions about her arm are coming from every direction these days — especially when you aren’t expecting it. Yesterday she was in the middle of an all out tantrum with her dad – She was saying no to everything he was asking her to do. No, I won’t wear this. No, I won’t wear…

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Camp No Limits!

The kids and I wrapped up our Camp No Limits experience yesterday. This is the first time I’ve been able to get onto my computer since then. It was the first time the camp came to Missouri – so it was very small. But there are also camps in Maine, Florida and Idaho this year.…

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I talked to Disney

A few posts ago I told everyone about an experience at Walt Disney World where I was really uncomfortable about how a bathroom attendant spoke to Jordan and I. After writing it down and hearing hearing the reaction from some of you guys in the comments here… I decided to send an email to just…

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