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Special Exposure Wednesday


It is one of those little concerns that make you think back to high school prom. You worry you might have the same dress as some other girl. I kind of worried about that when I bought Jordan’s Easter dress on the sales rack. That fear sort of came true — but it came true in a very cute way. There were two sisters wearing the same dress as Jordan — but in different colors. I had to take a picture of three little girls being super cute.

That same night we watched the 60 Minutes package about Dean Kamen’s work on prosthetics with the U.S. military. The DEKA project was presented in a really fantastic way. Jordan got to watch it twice… And she desperately wanted to see the prosthetics and people with limb differences. Since then, she’s talked more about how people have two arms and she has one arm. She’s just ingesting that difference in that bright and cheerful mind of hers. It is just another step in growing up in a world where there aren’t that many limb differences.

So… I’m thinking about figuring out a way to fund an opportunity for our family to attend Camp No Limits. The group is bringing a camp to St. Louis for the first time this summer. I realize Jordan is only 3… but I think it would be so cool for our whole family to have more time with other families of limb different kids. I built this page because I’m hungry for that connection. But this summer connection would cost $1,000 to attend. I’m pretty heart broken that this organization charges so much for families that just want to connect. I realize running a camp can be expensive… but we’re also families that spend a lot of money on therapies, extra doctors appointments and for some families there’s cost of prosthetic and orthotics.

I do have two other small, less expensive meetings planned in the coming months. In two weekends, we’re going to meet up with a couple of families while we’re in St. Louis. (I’m speaking at a conference and taking the whole family along) There’s also a summer meeting planned through another mom who lives near us. It’s excited to know we’re going to meet a few more families. It’s comforting and a chance to celebrate our kids and the amazing connections we make through them!
5 Minutes for Special Needs

No Comments

  1. Tonya on April 14, 2009 at 9:56 pm

    She is so precious and has the prettiest smile. Love the dress!

  2. tiff on April 15, 2009 at 1:01 am

    I think she looks the cutest!

  3. Stephanie on April 15, 2009 at 5:38 am

    What a cute photo! You couldn’t have planned it better.

  4. Lisa on April 15, 2009 at 9:23 am

    All three are beautiful. Love their dresses.

  5. Twin Power Mommy on April 19, 2009 at 3:03 pm

    Super cute with the three of them in the dresses.

    I saw that 20/20 episode. I really liked seeing what is new and upcoming in the prosthetic world. It really gave me and my hubby chills to see so much advancement and view the many possibilities for the future.
    I also think it’s cute that Jordan was so interested in the episode. She is really internalizing it all. It’s neat to see that she is aware of her difference, but the amazing thing is that she’ll ALWAYS be sensitive to that. Just as my Caitlyn is sensitive to others with a difference, so will be Jordan!

  6. Barbara on January 19, 2010 at 6:03 pm

    Coming here from the blog carnival – the 3 look-alike dresses is funny!

    Camp is great; hoping something worked out for you or will this year.

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