Services on the way out

For the last two years we’ve been very fortunate to work with an organization in our county that focuses on family resources. Basically, it is a county program that helps fund therapies, activities and grants for people with challenges to help them reach their full potential.

When Jordan aged out of our state’s 0-3 developmental program (ours is called First Steps), she did not qualify as “disabled” under the school district’s definition of disabled. It was awesome to hear but disappointing since we were getting help paying for Jordan’s occupational and physical therapy back then. After the school district didn’t qualify Jordan, we couldn’t get the financial assistance for therapy. Luckily our insurance pays a certain percentage of Jordan’s occupational therapy.

The county program did afford us the chance to get grant money to help pay the hefty 20% our insurance doesn’t pay on Jordan’s prosthetics. It also gave us funding to go to equestrian therapy and Camp No Limits. But after today’s evaluation, I’m pretty sure we’re going to lose the support. You see, the county program evaluates kids at ages three, five and 18. Today’s evaluation was in honor of Jordan’s fifth birthday. I’m bummed but happy at the same time. We have worked incredibly hard the last few years to build Jordan’s strength and abilities. Losing the county program is another example of what happens when you make sure your kid gets everything it takes to be on an even playing field.

Two years ago, the school district told me I had worked so hard with Jordan that we didn’t qualify. I’m pretty certain that’s what is going to happen with the county program. When I told the support coordinator how Jordan had even figured out how to use scissors, she told me it will probably be tough to keep Jordan in the program.

I realize we aren’t any more deserving for support. The bummer is without the county, we will not return to equestrian therapy and funding for camp will be more challenging. The prosthetic grant money was a life saver. I think that’s what stings the most.

Of course I’m lamenting early. We aren’t kicked out of the program yet.

I love and hate that I’m the proactive mom. I love that Jordan is rocking her world. I’m sad we lose out on support for keeping her so up to speed.

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