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Archive for March 2012

One in 88

I’m trying to wrap my brain around the statistic that every one child in 88 is diagnosed on the autism spectrum. Here are the stats I know about congenital limb differences: Limb difference occurs in 1 in 3,846 live births in the U.S., or at a rate of 2.6 per 10,000 live births. Congenital upper…

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An unseen hero

When I first moved to my current hometown, Cameron was a year old and the idea of having a second child hadn’t really come up just yet in our family. I did not have many people to give me tips on who to pick as a pediatrician. I called my healthcare provider and they gave…

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When excitement isn't every day

It’s Spring Break in our town… And for the first time in a while, I didn’t overly schedule the kids while they have time off from school. Both Jordan and Cameron were pretty crushed when I told them we decided to cut expenses and skip a beloved week-long theater camp. It’s Harry Potter-theme and Cameron…

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A gift for your support

I’m speaking on my local NPR affiliate on Monday about the Born Just Right community. I’m proud of the relationships we’ve built and touched by the number of people who reach out and want to connect. I plan to talk a bit about my vision after attending SXSW. If you’re really curious, the audio from…

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#onehandedproblems

The fun thing about being different is having fun with it! I was on Twitter yesterday when I discovered Born Just Right friend, Caitlin, mentioning this: I tweeted how it was a perfect reason to use #onehandedproblems on Twitter. Why not have fun about limb differences? We started a list on Twitter. But we should keep…

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Uniting the special needs world

As a member of the special needs community, I’ve learned a lot. I’ve learned there are SO many different types. I’ve learned there are so many different support resources. I’ve also learned there are so many different sectors of the special needs world that many of us do not connect or share our intel. I…

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Incredible things happen when you ask

Yesterday was finally the day for me to host a panel brainstorm at SXSW in Austin, TX. Thanks to your support and the love of many, Kate Canterbury (also known as @guavalicious) and Robert Rummel-Hudson (who wrote the book Schuyler’s Monster: A Father’s Journey with his Wordless Daughter) joined me to discuss what can be…

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Incredibly lucky

Three days ago this site was hacked by a really nasty couple of people. We have a couple of IP addresses and we’ll see if it’s possible to track that person or people down. But what is remarkable is that this site is back up and running in such a short amount of time. I…

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